Saturday, May 31, 2008

Steady as she goes
You might think that I would have lots to blog about. I am now 24 weeks pregnant and into my pediatrics rotation for clerkship. But, things have been pretty uneventful lately. Being at the kid's hospital around some really sick kids for most of the day has caused me to have some pretty reactive emotions, but that was expected. I doubt there is anyone with a heart that could witness a newborn having seizures everyday or a 2 year old that hasn't progressed past the development of a 1-month old and not feel it. But I am sure, with all the hopes and expectations I have for the little one kicking away at my ribs (not to mention the hormones), that I am a little more susceptible to this particular heart break. So I will tell one quick story.

I am on pediatric neurology and last week we diagnosed a 3 week old with tuberous sclerosis. On the scale of things, this wasn't nearly the worst case I saw but the discussion with the parents during which we told them the diagnosis will stay with me for a long time. TS is a disease where you could live your life not even knowing you have it. Or, on the other end of the spectrum, you could be developmentally delayed with behavioural problems and have to struggle your entire life. Given that this child was already having seizures he is probably going to have a harder road than many others. All these parents want, like probably any parent hopes for, is to know that their son is going to be okay. They would like him to be "normal" but, as time went on and they understood the diagnosis better, I think they just wanted to know that they would still have their child, the little boy that they had gotten to know over the past 20+ days.

1 comment:

Dragonfly said...

Glad they are dealing with it. That would be very hard.